(RxWiki News) Most patients with locked-in syndrome -- resulting from brain stem injury, which leaves patients unable to move or communicate except via eye movements -- report they are happy.
Based on a survey measuring self-assessed well-being in a cohort of 91 chronic locked-in patients, members of the French Association for Locked in Syndrome, 72 percent reported being happy, even though only 1 in 5 said they were able to engage in everyday activities that are important to them.
Around two-thirds of patients had a partner and lived at home, and about 70 percent reported having religious beliefs.
A total of four patients said they would opt for euthanasia if given the choice.
The 28 percent of respondents who said they were unhappy reported maneuvering difficulties, social/recreational restrictions and a lack of coping skills as reasons for their unhappiness.
A shorter period of living with the syndrome -- under one year -- was also associated with unhappiness.
As many as 50,000 suffer with locked-in syndrome in the United States.